Sorry I haven’t written lately. WordPress sucks and is full of spam, so I’ve avoided it.
Had surgery on August 24th. Was in ICU for about 3 days, and then a regular waiting room. No food, no drink for the first 5 days, just my feeding tube.
It’s September 27th now. I’m back to a pretty much regular diet. Some things like bread are still a challenge to eat. I have had to completely re-learn how to swallow. For now, I have to tuck my chin when I eat or drink. That seems to really help. I look silly, but it works.
I have to eat smaller meals, because I have a smaller stomach. So, things like spaghetti, that can be reheated to eat again 2 hrs later are perfect foods for me.
I’m down to one tube feeding a day. Doctor says if I can maintain or increase my weight on one tube feeding a day over the course of a week, I can try zero tube feedings. The key is not to lose weight.
I’ve been back at work for over two weeks now. I started off as half days, then gradually working my way to full time (minus doctor visits). Luckily my job is a desk job. I went back to work early, mainly because I was bored all day doing nothing and you can only sleep so much.
Speaking of sleep, I’m supposed to sleep on an incline. I bought a wedge pillow, but I have a helluva time sleeping on it. If I don’t sleep with my neck higher than my stomach, I run the risk of food rolling back up in my trachea. That’s happened once, and its not fun. The flap between my stomach and esophagus that keeps food down was cut out with my esophagus. But if I don’t eat 2 hours before bed time, stuff seems to stay down.
All in all, it went pretty well. Life changes suck, but there is still life.