Since Surgery

Sorry I haven’t written lately. WordPress sucks and is full of spam, so I’ve avoided it.

Had surgery on August 24th. Was in ICU for about 3 days, and then a regular waiting room. No food, no drink for the first 5 days, just my feeding tube.

It’s September 27th now. I’m back to a pretty much regular diet. Some things like bread are still a challenge to eat. I have had to completely re-learn how to swallow. For now, I have to tuck my chin when I eat or drink. That seems to really help. I look silly, but it works.

I have to eat smaller meals, because I have a smaller stomach. So, things like spaghetti, that can be reheated to eat again 2 hrs later are perfect foods for me.

I’m down to one tube feeding a day. Doctor says if I can maintain or increase my weight on one tube feeding a day over the course of a week, I can try zero tube feedings. The key is not to lose weight.

I’ve been back at work for over two weeks now. I started off as half days, then gradually working my way to full time (minus doctor visits). Luckily my job is a desk job. I went back to work early, mainly because I was bored all day doing nothing and you can only sleep so much.

Speaking of sleep, I’m supposed to sleep on an incline. I bought a wedge pillow, but I have a helluva time sleeping on it. If I don’t sleep with my neck higher than my stomach, I run the risk of food rolling back up in my trachea. That’s happened once, and its not fun. ┬áThe flap between my stomach and esophagus that keeps food down was cut out with my esophagus. But if I don’t eat 2 hours before bed time, stuff seems to stay down.

All in all, it went pretty well. Life changes suck, but there is still life.

Treatment over!

My radiation and chemo therapy is over! It seems as though there is some progress. I do believe the tumor is smaller. I’m back on eating full meals three times a day which is remarkable. I just wonder how much the tumor shrank.

It seems as though there is some progress. I do believe the tumor is smaller. I’m back on eating full meals three times a day which is remarkable. I just wonder how much the tumor shrank.

Now I wait till July 24 when I get a new pet scan and see exactly how the tumor is pressing. 


I had a sausage, egg, and cheese croissant for breakfast! That may not seem like a lot. I used to eat one every day 4-5 mont s ago. I haven’t been able to eat that much at one sitting since then. My breakfasts have been limited to Carnation nutrition drinks.

Next up: Lunch!

One Week Left

Sorry for lack of updates. GoDaddy hosting makes it harder to log in than it needs to be.

There’s one week left of treatment; 5 radiation, and 1 chemo.

Things are going well. Luckily with only one chemo per week, I don’t get the bad chemo effects. And I use that time to have fluids put back in me, so I feel fine.

And as of the last 24 hours, I’m eating more! I’m able to eat without coughing things up so I’m hoping that means the tumor is smaller. I haven’t pushed it yet, but I’ll eat more and more at each meal and see how I do.

Thanks for everyone for the supportive comments. I’m not the type that likes to talk about myself.

Three weeks after treatment finishes, I will have new scans to see how things are progressing.

Halfway there

Today, I passed the halfway point on radiation therapy (12 of 23) and chemo (3 of 5). On schedule to finish on July 1.

Then, in mid to late July, I’ll get a new PETscan and Endoscopy to see if the tumor has shrunk.

Then 3-4 weeks after that, surgery. (mid-august). Gotta start finding solution for the pups for that.

So far, so good. Don’t want to jinx myself but there’s no real residual effects from radiation or chemo. Just still have that nutrition problem where its hard to get enough nutrition in me, and sometimes causes me to be weak. Sitting down to dry myself off after a shower kind of weak.

Oh Poop!

It’s amazing how much a little thing like constipation can set you back. Yep, its a post about poop. Turn away now!

Had severe constipation Tuesday. It took all of my energy throughout the day (and some meds) to get through it all. And to add to that, I didn’t eat.

So I’m weak as hell right now. Walking across Target with Gatorade even wore me out.

I’m done with that and hooked up to the feeding tube again. I actually got a can of formula in me at work today. Going to try to get 2 in at work and 3 in at home. I need the calories.

I’m down to 135 pounds. I was 160 last fall, 145 after colon surgery, and never gained it back.

My neighbors downstairs are grilling, and it smells incredible. And I’m watching MasterChef where they’re making burgers and tacos and stuff I wish I could get down.

I was going to get some Krispy Kreme today for some calories, but they’ll check my blood sugar when I go for my chemo infusion tomorrow, so I decided not to.

Milo is staring at me. I think he needs to go poop outside. Annnnd a full circle of poop…….

Monday 6/6

Today was a day. I spent most of my day in the hospital, but mostly for small small things. ┬áThe day started off with getting my feeding tube unclogged. Thankfully, they didn’t have to open me up. The guy cleared the tube just by being a little more forceful than I thought I can be with the tube.

Then at 1, I went to get some fluids in me because I was so low on everything and very weak. My blood pressure was kinda low. I need to check it tonight and tomorrow. Then I had my standard radiation.

Either way, its all good, and I’m back on the feeding pump right now. I’m going to start doing a feeding or two at work. Then, maybe I can get another two at home. And more on certain days.

Nothing major, so this is just a diary posting.

Weekend of 6/4-5

Well, the weekend started off poorly when I noticed I couldn’t get water in to my feeding tube. It’s clogged. And of course, its after hours. Can’t deal with it until Monday. It’s Sunday night, and I’ve been living off soup and carnation breakfast drinks. I’m weak.

Other than that, everything is okay. No side effects from radiation or chemo yet.